User login
Enter your username and password here in order to log in on the website:
Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- ADEK and vitamins for pancreatic sufficient patients
- Pancreatic sufficient patients with CF should take ADEK and vitamins suppliments? My baby has deltaF508 and R1070W and is almost healthy (details are in a previous question). Thank you.
- 27.02.2012
- Steatorrhoea and elastase
- Hello, My little 3 year old daughter has a high steatorrhoea but a normal faecal elastase. How can we explain this? I thought that one without the other is impossible. She is treated with Creon and I was told that she has a pancreatic insufficiency but I thought that in this case faecal ...
- 14.02.2012
- Progress of CF, stomachache & physiotherapy
- I follow all the instructions, but I do not know if the physiotherapy I do to my child is enough or correct. What are the symptoms before the health of my child is severely affected? Is it true that stomachaches is a major symptom? It does not happen often and I am not sure if it truly happens, or ...
- 20.01.2012
- Acute oesophageal pain
- Hello, My daughter who is 14 often complains about severe pain of the lower esophagus that lasts a few minutes. The pain is sudden and without warning signs, its intensity is such that she can not breathe well as if she received a shot in the stomach. It lasts a few minutes. The occurrence of this ...
- 10.01.2012
- Vitamin D
- Which value of vitamin D is recommended for CF individuals?
- 23.12.2011
- underweight
- My daughter is 6 years old and her weight is 13,5 kg/100 cm. Where can I find a good doctor?
- 01.12.2011
- Creon
- How should one start a treatment with pancreatic enzymes ? What parameters to use? Do you only need to take it when you eat fat or also with other foods (vegetables/fruits) so that they are also absorbed better?
- 01.12.2011
- Recurrent Pancreatitis
- My daughter suffers from an atypical form of CF. In the summer she had acute pancreatitis, which has developed into a recurring problem since then. She has been hospitalized five times, but I still don´t understand why. We strictly adhere to the recommended diet. My daughter, who is allergic to ...
- 21.11.2011
- CF Patient´s Weight
- Is it possible for me to have fat transplanted into my body? I´m a CF patient with stable weight. When asked, doctors tell me that they don´t have any information about this type of transplantation. The reason for my question is that it´s really annoying that my body has no fat reserves and I ...
- 21.11.2011
- Lack of Appetite
- My six-year-old grandson was diagnosed with CF shortly after birth. Today he coughs more than other children and expectorates mucus. Otherwise he is an adroit and intelligent boy who runs, plays football, climbs trees and skis – all this thanks to Creon, massages, inhalation and nutritional ...
- 16.11.2011