Topics

Pancreas
My daughter’s CF was clearly diagnosed by genetic testing, however her case seems to be a borderline case. Should I point out these new circumstances when we go to the next regular check-up in the CF center? In the meantime, her appetite is better again and she complains less frequently about ...
14.01.2010
of fat-soluble vitamins
We are from Bulgaria. Much like we and our language should be added to your list. My question is: Imer levels of fat soluble vitamins it is free for patients with CF? I ask because even here in Bulgaria we have a laboratory to carry out this operation.
05.01.2010
Lung transplant
I am 21 and suffer from CF. In September 2008 I had a transplant and since the transplant I continuously feel sick to my stomach. I am nauseous, especially after the evening meal. My doctor prescribed Domperidon but I don’t have the feeling that this helps sufficiently. Because I feel nauseous ...
04.01.2010
Pancreas
Hello! My daughter, 5 years old, CF, has lately had stomach aches quite frequently, increasingly after eating. The stool is not oily in my opinion. Until now, only the lungs were affected. Could it be that now the pancreas is getting involved too!? We were admitted to the hospital in June, ...
29.12.2009
Vitamin D
Hello, dear experts, The book „Heilkraft D“ [German title: “Heilkraft” could be translated with: “healing power”] of Dr. Nicolai Worm lies in front of me: basically, it says that vitamin D deficiency is responsible for all kinds of diseases (not for CF, that is clear, but for cancer, ...
09.11.2009
Breakfast
Dear expert team I have question regarding a healthy breakfast for person with CF. My son is used to have nut wedges for breakfast – we cannot bait him with bread, cereals, fruit or anything else. Well, nut wedges are high calorific food for sure – but is sugar in such an amount okay? He ...
13.10.2009
Is it possible that Kreon leads to loss of appetite?
Hello, I want to ask, if Kreon decreses appetite. I have a 5 years old son, who was without any food problems but after starting to take Kreon his appetite started to decrease and after about 3/4 of a year his appetite is minimal and I am scared to force him not to create a food aversion. Thanks, ...
16.07.2009
Adverse effects of pancreatic enzymes substitution
I take pancreatic enzymes substitution (Kreon 25000) for a long time (like many other CFs). Which adverse effects can I expect? Thank You for an answer.
10.08.2009
no stool for 5 days
What should I do with my 4 mo child because he had no stool for 5 days?
10.08.2009
CF
Which food is not recommended for patient with cystic fibrosis? Sincerely, Medical student of Vilnius University
13.07.2009
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