Topics

Ghrelin (a hormone of appetite)
Hello, I am a mother of a CF little boy who has trouble eating enough, because of a lack of appetite. I know you've already talked about this and that the factors are numerous, but I also wanted to know whether the role of ghrelin was studied in cystic fibrosis. Is it the same concentration in ...
02.04.2015
Vitamins and nutritional supplement
Hello, our child tends to an ADHD like behaviour. Often exceedingly restless, impatient etc., in many questionnaires about ADHD a diagnose has been assured. We have been at two specialists, one diagnosed undoubtly an ADHD, the other disclaimed... Because of the illness of CF I prefer the ...
02.04.2015
Feeding
Hello, my son 5.5 years does not gain weight, he even lost (300g) at his last visit to the CF Center, if he doesn't gain weight, he will be back in hospital! I wonder if there are books with high-caloric recipes or links where I could find this kind of recipes. I have looked for it in the net but I ...
08.03.2015
Weight gain of baby
Hello our son had a tube from June to December, but he can no more stand the naso-gastric tube (vomiting...), we have removed it since mid-December and since then his weight stagnates despite substantial eating and increase of Creon. Do you think that we should consider a gastrotomy until the ...
08.03.2015
Cheese and cystic fibrosis
Hello I had a compost and the doctor advised me to abandone it because of the risk of aspergillus. Therefore, I wonder if I can eat cheese like Roquefort with mould: Penicillium roqueforti. In advance thank you for your response, Best Regards,
24.01.2015
Enteral feeding by gastrostomy
Hello My CF son, who is homozygous for delta F508, has a BMI of 14 and he seems unable to gain weight so he doesn't grow: he is 15 1/2 years old and has a length of 156 cm with a weight of 35.9 kg. All attempts have failed with calory supplements (my son was disgusted or took a supplement instead ...
16.01.2015
Nasogastric tube
Hello Our 8-month-old son has a nasogastric tube since the age of 2 ½ months. Currently, he has a normal weight for his age, diversification is well, he eats normally and well tolerates a richer diet. He is not thirsty in the day as he has half a liter of milk during the night. Our CF Center ...
14.01.2015
Probiotics in case of long term antibiotic therapy
Hello, my daughter (6-years-old, CF) gets for some years a long term antibiotic treatment. She had often diarrhea and abdominal pain, now she gets for nearly one year LGG capsules and the problems have been gotten better a lot. The health insurance, however, does not want to cover the costs for ...
03.01.2015
Fibrosing colonopathy
Dear expert team, I would like to know, if there are any differences between preparations concerning the fibrosing colonopathy. Before I used to have Kreon®, however had to switch to Pangrol® due to the costs. Is there probably a stronger tendency to fibrosing colonopathy when taking ...
22.12.2014
Enzymes
Dear ladies and gentlemen, my daughter has Cystic Fibrosis. She has DF508 and G542X. She is 3.5 years old. We live in Santigo, Chile. She was born with meconium ileus and has been operated within 24 hours after birth. She got an ileostomy. in October, 2011, her bowel has been reanastomozed ...
17.12.2014
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