Topics

Failure to thrive
Dear expert team, our daughter (6-years old, CF) refuses any high-caloric additonal food. She has a normal lung function, is stable without infections and very active. Unfortunately, she is often estimated to be 2 years younger, as she is only 106cm high and weighs only 15 kg. She is going to ...
03.12.2014
Vitamins
Hello, I have a small question about the vitamins which my son has to take. How I have to give them to him? The vitamin K: can I put it in his feeding-bottle of chocolate because he likes not at all the taste when I give it to him with the pipette? The uvedose® [vitamin D]: it is a bulb to be ...
25.11.2014
CREON ®
Hello, CREON ® has to be taken at the beginning of meal. I have just read that it is recommended to take it with an acid food (example 1 spoon of compote). Is it exact? Why? Thank you in advance.
25.11.2014
Calories from gummy bears?
Hello, CF patients are told to eat more calories, so far so simple. Does it play a role in which way I take the calories, via wholefood/ bio wholefood according to Dr. Bruker, via fast food from McDonalds or via much malt drinks, gummy bears and soft cheese? Best regards and many thanks for ...
10.11.2014
Calory need in case of normal lung function
Dear expert team, does a CF patient with a normal lung function (same values as a healthy person) have the same caloric requirement of 150% as a severly ill CF patient? It does not seem logical to me, as the breathing work in case of patients with a normal lung function is markedly lower. ...
10.11.2014
Meconium
My 13-year-old daughter has recently been examined several times because CF was suspected. She had a lot of lung infections with Pseudomonas etc. Shortly after her birth CF was also suspected (or Hirschsprung) because she did not release the meconium. After her birth she stayed 1,5 days in ...
10.11.2014
AQADEKs
Hello, We are from Bulgaria and there are no CF centers. I would like to ask a question about the intake of combination drug preparations, for example AQADEKs. As in the country different things are recommended. Shall I accept?
03.11.2014
Malnutrition and cystic fibrosis
I am a 45 year-old adult with cystic fibrosis since birth. My weight has always fluctuated between 39 and 42 kg since my teens. Since 1993 I am diabetic and treated with insulin; I have been losing weight for 2 years. With bags of Clinomel® [parenteral feeding soultion] for 1 year, I have gained ...
20.10.2014
Nortase®
Is it possible to use Nortase® in case of a known ABPA and CF? If not, are there alternative preparations? The normal pancreatic enzymes are already given in a very high dosage and seem not to be sufficient, omeprazole is already taken for a longer time. Thank you.
29.09.2014
Removal of the gallbladder and digestion of fat
Hello, I have the following question: in case of a CF patient with a high need of pancreatic enzymes (and in spite of this frequent fatty stools) the gallbladder should be removed because of gall stones. Would this in addition even more restrict the digestion of fat (he is already very ...
29.09.2014
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