Topics

Dosage of Kreon and side effects
My daughter is 5 years old and suffers from CF. She takes 2500 IU of Kreon per gram fat. We have the impression, that it has become insufficient. She has always a bloated belly, complains lately regularly about abdominal pain. She has fatty stools rarely, however sometimes up to 5 times a day. We ...
30.06.2014
Do MCT-fats still have a justification in the nutritional management of CF?
There are manufacturers, who recommend medium-chain trigycerides, MCT, for patients with CF, like it was common practice in the 80ties of the last century for CF patients, before the micro-encapsuled digestive enzymes came on the market. From a medical point of view, is there still an indication ...
02.06.2014
Puffy belly
Hello, I am a 43 year-old patient with CF. I am now on the waiting list for two new lungs. My lung function fluctuates around 30 %. I do not have liver problems, and in the screening, no complications were found. The only thing I have problems with lately is a very puffy belly. In the evening there ...
02.06.2014
Persistent diarrhea in babies
My 13 month-old baby girl was reported suffering from a moderate form of cystic fibrosis since her 2nd month. She has food allergies and frequent constipation since birth. Stool analysis did not reveal any pancreatic problem, from what I understand. But today, she has diarrhea since a week. Not ...
19.05.2014
Pancreatic atrophy
Hello, the conclusions of the last MRI performed in January 4, 2014 shows = "slight increase of the cystadenoma size with no change of the pseudo solid portion of the pancreatic head, increase in dilatation of the main pancreatic upstream duct and pancreatic atrophy". Elastase value (April 17, ...
19.05.2014
Enzymes
I have two daughters, aged 3 and 1,5 years. They both have CF. The little one has not gained any weight for the last 3 months and weighs 11 kg. I have increased the creon following her doctors’ recommendations but to no avail. What is going on? Thank you.
19.05.2014
question about milk
Hello to you! First of all, a big thank you for this website: it's just great. Here is my question: my boy aged 20 months drank growth milk until now, but today he does not want to drink anymore. What to do? Knowing that he still drinks 3 baby bottles during the day (morning, after nap, night), ...
30.04.2014
ABPA - Kombucha fungus
Hello, can self-made Kombucha (a beverage from tea and also the Kombucha fungus) at home be envetually a problem for a CF patient with ABPA (allergic bronchopulmonary aspergillosis) ? The fungus is only be covered in a glas with a slide of paper towel. Many thanks in advance.
30.04.2014
Klebsiella species in the bowel
How can I find out why Klebsiella species have multiplied so massively and unhealthily in my bowel? Mutaflor® helps, however I fear that after finishing the treatment without getting rid of the cause everythings starts again.
30.04.2014
Variations of blood sugar values
Dear CF team, I have no proven diabetes in case of CF. The regularly performed OGTT (oral gulcose tolerance test) has been borderline for years, never unambiguously too high. The fasting blood sugar values are between 105 and 138. Insulin donation for the night has been discussed, however the ...
29.04.2014
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