Topics

Pseudomonas vaccine
Hello, I am the mother of a seven and half months old CF baby. Today my baby is well. I have heard about clinical trials for Pseudomonas vaccine. What is the development stage? What are the results about these trials? In advance thank.
12.11.2012
Flu vaccine as nasal spray?
Hello, We are getting our daughter (CF, turning four in two months) a flu shot every year in the fall. Yesterday the paediatrician informed me about a new vaccine for children that is applied like a nasal spray. The advantage is that children can be spared the pain of the injection. There are a ...
29.10.2012
flu vaccination
Is it important to have your child with CF vaccinated against flu? Is there any danger in administrating the flu vaccination (does it possibly contain dangerous substances f.i. antifreeze). Many people do not favor flu vaccination. Which considerations should I make.
29.05.2012
Vaccine against acute bronchiolitis
Hello. My daughter monthly receives vaccine against bronchiolitis. Why some CF centres recommend this treatment and others don’t? Sincerely.
27.02.2012
flu vaccination
Is it important to have your child with CF vaccinated against flu? Is there any danger in administrating the flu vaccination (does it possibly contain dangerous substances e.g. antifreeze). Many people do not favor flu vaccination. Which considerations should I make.
24.11.2011
Swine flu
Should I have my eleven-year-old daughter vaccinated against swine flu? She suffers from cystic fibrosis and she has been vaccinated against common flu.
21.11.2011
Vaccinations
My son is 7 months old and was born with meconium ileus. He has F508del-p.Glu92X. He has had surgery twice so far. By now, he is doing well, although he is being treated against his disease, of course. My question now: since my son has had to endure quite a bit with his health, does he have to ...
03.11.2011
Vaccinations
Dear team, my son, 27 years old, CF patient, has to go to Asia (Mumbai, Shanghai) for ten days on business. Which vaccinations would you recommend (which urgently, which only optionally)? He is in relatively good health; pseudomonas about once or twice a year, and problems with mold fungus ...
13.02.2011
about swine flu
i have a question about the "hysteria" of swine flu .. what to do in this situation, we as parents? should we keep children (those with cystic fibrosis) home, even if in their school are not registered such cases? my child tells me that everyone around him sneeze, cough and I am afraid to leave ...
29.11.2010
Vaccination against Pseudomonas Aeruginosa
Ladies and Gentlemen, I feel sorry that the vaccine Aerugen (Berna) has not been marketed yet, although the vaccination was successful in CF patients. Why it is not possible that grown-up CF patients decide for or against vaccination? Is this vaccine still available? How is the development ...
15.11.2010
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