Topics

Nasal spray influenza vaccination
Dear expert team, last year, at this site, it was advised against the nasal spray influenza vaccination for CF patients. On the website of the German patient organization Muko.ev it is recommended this year, that it would even have a better effect. Are there any new findings concerning this kind ...
18.11.2013
Drugs/vaccination during pregnancy
Dear team, I am 30 years old, suffer from CF (DeltaF508), have a very good lung condition (FEV1 115%), in exchange I have an insulin-dependent diabetes mellitus. Now I got to know yesterday, that I am pregnant in the 5th week (absolute desired child, husband is not a CF-carrier). Now I ...
18.11.2013
E.coli
Dear expert team, I am 47 years old, CF, and contracted E. coli in the lungs. A first i.v. treatment approach with Cefotaxime reduced the germ count but that was it. Now I am supposed to inhale Colistin, E. coli is sensitive. I also take Amoxiclav against staphylococcus aureus that I have ...
12.08.2013
Vaccinations for CF children
Each given vaccination contains also mercury, according to my knowledge. Which vaccinations are indispensable for CF children? Which should be avoided due to the burden with mercury?
25.06.2013
Vaccination against diphtheria
Does my grand-daughter (CF, nearly 5 years old) have still to be vaccinated also against diphtheria in the frame of the general protective vaccinations? I have read that the illness does nearly not exist anymore.
19.06.2013
Whooping cough (pertussis) and CF
Dear expert team, on the 3.3.13 I had asked a question on my severe dry cough, many thanks for the answer, Mrs. Dr. Smaczny. In the meantime I know what I have, whooping cough (pertussis) and that with 48 years! What I am astonished about is why the vaccination record is not check routinely, like ...
10.05.2013
vaccine against Pseudomonas and Staphyloccocus
Hello, I have heard of vaccine clinical trial phase II and III called IC43 (pseudomonas) and V710 (staphyloccocus). Do you know more?
04.03.2013
High-dose i.v. therapy with vitamin C (7.5g)
Dear expert team, Due to frequent infections (CF patient, 50 years old), my doctor suggested a high-dose vitamin C i.v. therapy (twice a week) in addition to taking antibiotics. This is supposed to strengthen the immune system as a supportive therapy. I am now wondering whether this makes ...
15.01.2013
Pseudomonas vaccine
Hello, I am the mother of a seven and half months old CF baby. Today my baby is well. I have heard about clinical trials for Pseudomonas vaccine. What is the development stage? What are the results about these trials? In advance thank.
12.11.2012
Flu vaccine as nasal spray?
Hello, We are getting our daughter (CF, turning four in two months) a flu shot every year in the fall. Yesterday the paediatrician informed me about a new vaccine for children that is applied like a nasal spray. The advantage is that children can be spared the pain of the injection. There are a ...
29.10.2012
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