Topics

Phage therapy
Ten years ago I have already sent a question to Vaincre la mucoviscidose (French CF patient organization) concerning the subject without a really satisfactory answer. While antibiotic resistance is becoming a social problem why isn't the use of phage therapy further developed, even if the results ...
29.07.2014
Vaccine against Pseudomonas aeruginosa
Hello There was a clinical trial for Pseudomonas vaccine. What are the news about this clinical trial? Are results available? Thank you.
29.07.2014
F508del heterozygous- first recognitional breakthrough?
Hello, did I get it right from the English that for the first time there has been a significant improvement in the usage combination VX-661 and KALYDECO® (Ivacaftor) in case of F508del heterozygous patients "with/independent" of G551D? That sounds like a breakthrough for the heterozygous ...
28.07.2014
Drugs for delF508
Hello, I have recently visited the annual meeting in Bad Soden, Germany. I have heard there, that Kalydeco® together with a potentiator is said to be licensed already in June 2014. Short-dated also a liquid for children is said to come on the market. Did I get this right? Does this mean the ...
21.07.2014
Results from Vertex clinical trial for patient with delF508 mutation
Hello I’m a CF patient and I’m carrying 2 different mutations: delF508 and 1717-1GA of exon 11. I would like to know if you have the results of the Vertex‘s clinical trials. Are they encouraging? If not, when will they be available? Best regards
14.07.2014
Cayston®
I’ve heard (by a service provider) about a new molecule named “Cayston®” that is used to treat CF adultes againt Pseudomonas aeruginosa. This molecule would be used with a new machine that will arrive on the market (or already has?). This person could not tell me more. I turn to you in order ...
14.07.2014
VX-809 research
Hello, in the research news dated 01.01.2013 (here the link to a German website: http://muko.info/forschung/news-detail-und-archiv/detailansicht/article/zulassungsprogramm-fuer-korrektur-des-f508del-soll-2013-starten/17.html ). it has been said, that the market authorization for "VX-809" ...
09.07.2014
N30 Pharmaceuticals company
Hello Do you have information regarding the progress of research performed on 2 molecules ((n91115 et n6022) from N30 Pharmaceuticals company? Can we have hope that this type of drug could emerge soon? Do you think that these molecules and the miglustat, based on their mechanism of action, ...
26.05.2014
Amlexanox
Dear expert team, I got aware of the following publications: http://www.ncbi.nlm.nih.gov/m/pubmed/22938201/ and http://www.google.com/patents/EP2437741A1?cl=en I would like to know if there is any data yet concerning the correction of CF nonsense mutations? Respectively, if there are any ...
12.05.2014
Nitric oxide therapy
Hello, are there already any news concerning the above mentioned therapeutic trial? Thanks.
29.04.2014
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