Topics

Ataluren® project (PTC124)
Hello Could you please give me some news about Ataluren® project and if results will be available soon ?
24.11.2011
Stem cells and CF
I would like to ask if stemcells can contribute to the therapy of CF
14.11.2011
Bronchitol®
Hello, I’ve just seen that Bronchitol® should be commercialized in Europe. Is this medicine for all cystic fibrosis patients? What are the advantages of this new medicine ??? Thank you for your answer
10.11.2011
VX 770 & G126D
Is VX-770 suitable for the mutation G126D?
27.10.2011
bronchitol®
Hello, could you please tell me if inhalative bronchitol® (dry powder of mannitol) is already available in Germany? Many thanks
10.10.2011
Heterozygous mutation F508del with deletion exon 17a and b
Dear ladies and gentlemen, is there any research about the above mentioned mutations? Could VX770 be also helpful here? What does the above mentioned mutation mean? We have been told that our daughter (1 year) will be with the utmost probability compound heterozygous. Many thanks for your ...
10.10.2011
new clinical trial
Hello Our physician told us about a new research protocol calling IGY IMPACTT ... from a Swedish laboratory. The treatment is made from egg yolk, to combat Pseudomonas aeruginosa. Can you give me information related to this treatment. Thank you
01.09.2011
G551D and delta F508 mutations
Hello! My daughter has the above mutations. Can you say something about progression? Could VX770 help? She is six months old. Would an application be too early at this point?
04.08.2011
Efficacy of VX 770
Dear expert team, I have besides F508del the mutation "FTR del 2,3". In case of the homozygous occurence of F508del, one does already know, that VX 770 is efficient only to a very small extent concerning the nasal potential difference. It is known to me, that there are at the moment no ...
01.08.2011
Good news about the combination VX-770 & VX-809
Hello, I noticed news about the VX-770 and VX-809 combination for patient with F508del mutation (deltaF508). Unfortunately I am not very strong in English and the automatic translators are not always clear. Here are the sites where I could see the ...
12.07.2011
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