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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Novelties on Pseudomonas aeruginosa
- Would it be possible to know where the research stands on Pseudomonas aeruginosa worldwide? Is there any new antibiotic? Thank you.
- 31.07.2013
- Crataegus
- Hello, Several years ago, a study group in Gießen [Germany] showed in a small study a positive effect of Crataegutt® [crataegus] on the chloride channel in CF patients. What is the current status? Formely, I was a participant of the study and maybe I would like to repeat the tests, i.e. ...
- 29.07.2013
- Cystic fibrosis
- DEAR EXPERT TEAM I would like to know more about the availabilty of Kalydeco® in Bulgaria and if there will be any point for someone suffering from CF with the mutations 621+1G/T, N1303K to try this medication and also if not suitable what other treatment should we look for in order to keep ...
- 22.07.2013
- research
- Hello I want to know if there are researches for people carrying one F508del mutation associated with other mutations, because we heard about Vertex’s trials but they apply only people with two F508del mutations. Thank you for your website.
- 08.07.2013
- F508/R1162X
- Dear ladies und gentlemen, unfortunately we have to assume that our unborn son (31 st week of gestation) has inherited the mutations F508 and R1162X, as we are both each heterozygous carrier of one of those mutations and in the last prenatal ultrasound investigations always an echogenic bowel ...
- 19.06.2013
- CF 2013
- Essence of question: is there any information of new medicines improving the underlying defect in CF?
- 27.05.2013
- Inhalation of sodium bicarbonate
- Dear expert team, I would like to know in which cases it is recommended in CF to inhale NaHCO3 (sodium bicarbonate), how this is done (amount/frequency/dosage/kg or age) and if this inhalation is done in addition to the inhalation with NaCl-solution or instead of it (i.e. in addition with ...
- 15.05.2013
- Bronchitol® benefit
- Bronchitol® is proposed to CF patients. Is the treatment added to inhaled hypertonic saline serum/ inhalation with salbutamole or does it subsitue the treatment? What about differences between lipromatase and CREON®?
- 13.05.2013
- Kalydeco® also before 6th birthday?
- My son, 4, CF, has the mutations G551D and dF508. Until now he is doing quite well concerning his general condition, even if he already had to fight strongly in his first year of life. Now I am asking myself if Kalydeco® can be prescribed for him even before his 6th birthday. Finally it is ...
- 10.05.2013
- VX983
- Hello After VX770, VX809 and VX661, VERTEX announces a clinical trial with VX983 (in combination with Kalydeco™-VX770). This clinical trial concerns patients homozygous for deltaF508. Could you tell me more? Could you tell me if VERTEX has made the deltaF508 mutation its "workhorse" or if ...
- 10.05.2013