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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Bronchitol®
- Hello, I would like to know if Bronchitol® (Mannitol) is finally available in France and if the study for children older than 6 years has given positive results. Thank you
- 04.03.2013
- Ataluren
- Hello, My son has a mutation concerned by Ataluren, I would like to know if new results have been publish regarding Ataluren development? Thank you in advance.
- 28.02.2013
- New drug for ΔF508 as of March 2013?
- This question is addressed directly to Prof. Dr. Burkhard Tümmler [original question was asked on the German platform of ECORN-CF]: Is it true that there will be a new drug on the market as of March 2013 which is supposed to make a "normal" healthy life possible for CF individuals with type ...
- 28.02.2013
- Kalydeco®
- Dear expert team, I am a 24-year old girl suffering from CF. I come from Bulgaria, where there is no European standard therapy and no CF-experts either. That means that I get information about new drugs from German and English articles. I have read several times about Kalydeco® (for G551D). I ...
- 05.02.2013
- EMA (European Medicines Agency)
- Hello, I would like to know what is the role of EMA in treatment research? Thank you in advance.
- 21.01.2013
- new medicines
- What can you tell us about new medicines to be expected? How are the examinations and tests progressing? What are the expectations of the medicines and when are they expected to come on the market? Are they meant for delF508?
- 10.01.2013
- Genetics, diagnosis and therapy option
- Can the new drugs (Vertex) only used with F508del homozygous or would that also be possible with F508del and IVS8T5? Can one tell exactly from the genes or through a test (e.g. blood) what our son's "protein problem" is? Many thanks.
- 20.11.2012
- CYSTIC FIBROSIS
- What is new in the field of gene therapy research except of routine treatment with antibiotics, enzymes and lung transplantation?
- 20.11.2012
- VX Combo trial 770/809
- Hello, how long will the combo trial phase III last? When will the results be presented? Thank you, Best regards,
- 15.11.2012
- G551D/G542X
- My husband is suffering from CF and carries the mutations G551D/G542X. Do theses mutations express themselves within the cells or does one mutation dominate the other ?
- 14.11.2012
