Topics

clinical trial
Hello Is there any clinical trial regarding patients with mutation G542X/Delta F508 ? Thank you
13.03.2015
Ivacaftor and Lumacaftor combination
Hello, Could you tell me if this combination (Ivacaftor/Lumacaftor) has a marketing authorization and whether it is already prescribed by the CF Centers for delF508 mutations? Thank you,
13.03.2015
Research for F508del heterozygous
Hello, I would like to know about the research for people with CF with only a single gene of this type (F508del). Thank you in advance
13.03.2015
Vertex and F508del and 1717-1GA in exon 11
Hello, I have got the F508del and 1717-1GA in exon 11. Do you know about the clinical trials for my mutation, is there any trail in progress? Best regards
12.02.2015
Existing remedy
I heard that homeopathy "cad Crataegus" works pretty well: do you know something about that? Thank you.
12.02.2015
Artilysin® by the company Lysando AG
Dear ladies and gentlemen, are the published results from the company Lysando AG indeed as promising concerning the eradication of resistant germs with the drug Artilysin®, respectively probably is already the usage forseeable? Especially Artilysin 175 ® against Pseudomonas. Many thanks
07.02.2015
cysteamine and epigallocatechin gallate
Hello Our 9 months old daughter suffers from cystic fibrosis (homozygous for F508del mutation), and I read an article the month before regarding a potential treatment for cystic fibrosis by the use of cysteamine associated with epigallocatechin gallate (EGCG), which should have positive effects on ...
30.01.2015
Kalydeco® for children
Dear expert team, is there any concrete information about the time of licensing of Kalydeco® for children from 2-5 years? How successful were the studies? My daughter has G551D, can the health insurance in spite of this refuse to pay the costs? Are there any reasons that speak against ...
03.01.2015
Clinical trial genetic therapy
Hello Do you know if the UK clinical trial "genetic therapy" is closed and what are the first conclusions? Thank you
10.12.2014
Mycobacteria
Hello, My 6 year old son just had a sputum culture that shows the presence of mycobacteria. I wished to have more information on this germ and whether my son will have this germ all the life as I gather that it is resistant to antibiotics. Also I'd like to know where is the research regarding ...
03.12.2014
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