Topics

CF and airing of the house, house building
We have the possibility in our new house to use the air that has been cooled down in earth wires as airing for the rooms and air-conditioning. As our daughter is a CF patient, we ask ourselves if in the wires Pseudomonas aeruginosa could grow and can distribute via the air-conditioning in the ...
17.02.2014
Disinfection of inhalation device
Hello, how do I disinfect most effectively the different parts of the eFlow after inhalation, in case there is no vaporiser, electric water jug or similar devices and there is even not the possibility to heat/boil the different parts? Are there special solutions, in that the parts can be ...
11.02.2014
Caries
Dear experts, my son (5 years, CF patient) has caries for the first time, at an early stage. In spite of the former detailed talks with the treating dentist about the illness, as well as about the specialties of the dental treatment in CF patients, the lady immediately does not want to take any ...
10.02.2014
Natural disinfectant
Being a little tired of using chemical household products very regularly (maybe too regularly) since the birth of my son with cystic fibrosis, I decided to make my own ecological disinfectant with bicarbonate of soda, white vinegar, HE lemon and of tea tree and water. Is this mixture enough ...
03.02.2014
Indoor playground
As being mother of a little girl (16 months old) with CF, I would like to show her the joys of indoor playgrounds (ball pit, slides), but I would like to know if it is possible and if there is a problem with bacteria? Thanks
03.02.2014
Visit of indoor playground / danger from strong fan of jumping castles
Dear expert team, is there any danger from the fan of a jumping castle? Partly completely closed "rooms" with strong fan/ air pressure. I have already tried to get some information myself, however do not find any answer. My son (CF patient, 5 years old) is invited to a birthday party, which ...
03.02.2014
Air humidity
Dear expert team! There is a former question (http://ecorn-cf.eu/index.php?id=65&L=0&tx_expertadvice_pi1%5Bshowitem%5D=2767&tx_expertadvice_pi1%5Bsearch%5D=) that have only been asked and answered recently, that deals with the improvement of the air humidity in the bedroom in the wintertime. This ...
03.02.2014
hygiene
Hello, I recently started working with patients with cystic fibrosis. I search all the recommendations on hygiene validated by recent studies. There are two recommendations on the website of Roscoff [France], dated in March 2004, including one for patients and one for professionals. Are these ...
03.02.2014
Risk of lung function test
Hello, I am 35 years old and due to an unfullfilled wish to have a child a genetic testing has revealed a mutation (F508, a full sequencing will soon be done). Because of my infertility (even if sperm ducts are present) my physician initiated a sweat test. Result 46 (control area). In the ...
27.01.2014
Demineralized water and antibacterial hand gel
Once opened, how long can an antibacterial and antifungal hand gel for the preparation of aerosols for my child with cystic fibrosis be used? Do you recommend some in particular, maybe more effective in relation to the disease? How long is the deionized water useable, once opened for sterilization ...
20.01.2014
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