Topics

High blood pressure (associated to the intake of the pill?)
My daughter is 26 years old, has CF and persistently high blood pressure, it does not matter which drugs she takes because of CF. She is doing anti-conception with the pill. Can the pill be resposible in CF for causing other symptoms compared to a healthy women, e.g. high blood pressure? Many ...
17.07.2017
Wish to have children
Hello, my partner is 21 years old and suffers from CF. Half a year ago he has been told, that he has a knot in the tube and therefore it would not be possible for him to have children the natural way. However, a knot can not be felt in the tubes anymore (before one could feel it always); can it ...
12.06.2017
Heterozygous fetus of 14 weeks
After a trophoblast examination the results were negative for Down syndrome, but the fetus is heterozygous for CF. Will the baby always remain a carrier? Is there a chance for the baby to have CF? Its sister is 20 months old and normal. An amniocentesis was performed and a molecular karyotype was ...
29.05.2017
Women over 35 years / climacteric period
Hello, I am looking for information about the climacteric period in case of CF, is there any information about intake of hormones, Orkambi, transplantation and gain of weight? How does the metabolism change? What does this mean for women with CF? In general I am looking for information around ...
28.04.2017
Pregnancy and aerosol
Hello, Mum of a 20-month-old CF baby, I just learned about my new pregnancy. While waiting for a prenatal test to know if the child is affected, can I continue to administer tobramycin and colistin aerosols (and pulmozyme in the morning) alternately twice a day. Knowing that during aerosol ...
13.04.2017
Pregnancy, Patiente and aerosoltherapy
Hello, I suffer from CF and in the second months of pregnancy. Can I continune my aerosol therapy with rhDNAse (Pulmozyme), colistin and tobramycin? What about the oral antibiotics (azithromycin etc)? Or what about potentailly necessary i.v. therapies? Is this without danger for my baby? Many ...
13.04.2017
Neonatal diagnostic
Hello, I would like to know to what extent a choriocentesis conducted for screening for cystic fibrosis can be reliable. Can not the sample be contaminated by the blood of the mother? Is it mandatory to wait at least for the 10th week of pregnancy to perform choriocentesis? Without counting the ...
14.02.2017
To have children - CF in the family
Hello, the good brother of my husband has a child with CF. Now my husband and I think about family planning and we are asking us the question, if we were carriers. Can we have a test done for free? According to our general practitioner, we have to pay the test ourselves (7000 Euros). Can the ...
20.01.2017
Sexuality and libido
Hello I'm a 23-year-old CF woman. For 3,5 years I have a boyfriend and I have great difficulty with sexuality: I am more often tired and I have a "sensitive" cervix (inflammation). I bleed after every sexual relation (this problem has been seen and reviewed several times with a gynaecologist and ...
07.11.2016
Nuvaring® and levofloxacin
Are there any interactions between Nuvaring® (vaginal ring releasing hormons for contraception) and levofloxacin 500? I took it for 7 days. I have started last week on wednesday and stopped yesterday. I have taken the ring our last saturday and will put it in again on the coming saturday. Is this ...
07.10.2016
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