I am the mother of a 16-month-old boy with cystic fibrosis, diagnosed at 2 months of age. My parents in law have a farm with cows. There are also large reservoirs with maize and grass to feed the cows. Also horses and dogs are on the farm. What should I pay attention to and what is absolutely not ...
My 15-year-old daughter (CF) was diagnosed with ABPA. We could not find the source of the mould. Now we want to buy a new mattress for her bed. I had a memory foam mattress in mind, however when testing, my daughter preferred an innerspring mattress and would like to buy this one. Is there a ...
I have been treated for several weeks with inhalative vancomycin due to a sudden finding of MRSA germs in the sputum, additionally with oral dosages of rifampicin and cotrimoxazole. At the moment, the germ is not detectable anymore, instead masses of Aspergillus have been found. I have realized ...
Hello, I am a 45 year-old woman with CF and allergic asthma (tested for trees, grases and fungi = Aspergillus). As the Symbicort® (formoterol and budesonide) is not enough anymore I have to do an additional therapy. Which of the two therapies against the allergic asthma would you recommend to ...
ABPA and prednisone
Dear CF-team, My 12-year-old daughter has CF with ABPA (allergic bronchopulmonary aspergillosis). For that reason she is being treated for several years yet with prednisone. This has a consequence on her growth. She is little for her age and I presume she has to take the prednisone. What are the ...
Ataluren and ABPA
Hello, Firstly, I would like to know where is the third phase of the drug ataluren, and secondly whether this drug is effective against ABPA in CF patients, or only effective on congestion?
Mould in nuts
Dear experts, Is it possible that swallowing mouldy tasting nuts leads to an allergic reaction in the lungs of a CF patient (who also had ABPA (allergic bronchopulmonary aspergillosis) before)? Thanks for your answer.
Dear expert team, I am 22 years old and have CF. For some time now, my IgE has repeatedly been elevated (above 500). A RAST sensitivity class 3 to aspergillus is given; the sputum showed candida above all. The remaining values do not point to ABPA. Does this suggest ABPA? Or could it be ACP? ...
Causes of hair loss
Dear expert team, Since an exacerbation at the end of March 2012, which was probably caused by ABPA, I (25, female, CF) have to take several additional drugs. Around May 2012 I noticed that I am losing decidedly more hair than earlier. I initially blamed the itraconazole I had started taking, ...
Hello, Are there recommandations against visiting natural caves for children with cystic fibrosis? I think especially about the Pseudomonas aeruginosa germ. Otherwise what precautions should we take (wearing a mask) ... thank you
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