Topics

Cystic Fibrosis
Hello, after a pancreatitis, my 10- year-old son has been diagnosed with cystic fibrosis. He never had bronchitis. Sweat tests values are 55 and 50. The N1303K mutation was identified. His lungs, will they necessarily be damaged? Can people live with pancreatic insufficiency? Thank you very much ...
09.12.2013
Well-being and food
Hello, I'm currently a dietetics student ("BTS") and I have to accomplish a personal study. Awared by TV spots and by a first research during my senior year, I have chosen Cystic Fibrosis for my subject of study. I would like to know if food has an impact on the well-being of CF people? Thank ...
09.12.2013
29 years old CF patient
I am from Romania and I have a 29 years old son with CF, which was diagnosed late... when he was 24 (genetic mutation-milder form= G85E; R347P and sweat test= 110) In childhood he was diagnosed with a syndrome malabsorption. At age 12 he already had sinusitis and nutrition problems, dry cough.. ...
09.12.2013
Mild cystic fibrosis
What is the incidence of a mild cystic fibrosis? Is the prognosis for survival concerned? What is the future? (My daughter is 8 years old).
18.11.2013
Cystic Fibrosis
Why is cystic fibrosis more common in light-skinned than in dark-skinned people?
22.10.2013
High blood levels of triglycerids
Hello, I am 32 years old, and was diagnosed with bilateral absence of the vas deferens (CBAVD). I am heterozygous for the DF508 mutation (second possible mutation unidentified) and "suffering" from chronic sinusitis. My sweat test, if I understood, ranges in the intermediate values and does not ...
21.10.2013
Hypertriglyceridemia
Hello, I asked a few days ago a question about high levels of triglycerides in the case of an isolated CBAVD (congenital bilateral absence of vas deferens, heterozygous for the DF508 mutation, intermediate sweat test, chronic sinusitis). I realize that I was wrong when I mentioned a high HDL ...
21.10.2013
Life expectancy after lung transplantation
Hello, I would like to know, what is the life expectancy after a lung transplant? The transplant was done about fifteen years ago. Thank you.
30.09.2013
my life expectation
Hello ECORN-CF experts, I am 13 years old and I suffer from mild CF. Only my lungs are infected. My liver and other organs are all right. Everywhere I see things on the net about life expectations of 40. I am a normal child and want also a future. What is my life expectation? Gr. Imar
30.09.2013
How would I benefit from the diagnosis of CF?
Hello, my physician assumes an atypical CF. I have an exocrine pancreatic insufficiency for years (elastase: 65), partly increased blood sugar. Even after removal of the gall bladder I still had gallbladder sludge in the bile duct. Now a fat liver has to be added, even if I do not eat food rich ...
19.08.2013
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