Topics

life expectation of CF nowadays
My son is born in 2015 with the classical form of CF. What is the life expectation of a CF patient born in 2015?
01.02.2016
State of research
Dear expert team, I am interested, if there are already any studies, that report how may people with CF are in Germany that have been diagnosed late. I mean here at adult age and especially older than 40 years. Many thanks in advance and best regards, E. [name removed from Ecorn-CF]
28.01.2016
Nursery
What kind of childcare is recommended for a 2 months old CF baby? Home care or childminder?
24.11.2015
Fog
Hello, what recommendations can you give us in foggy weather when the CF child is in school? Should he stay in the classroom during recreation in those days? My 7-year-old son has mainly affected the respiratory level. He's often obstrucitve and has two intravenous treatments per year. Thanks for ...
30.11.2015
Maternity visit
Hello, I am already pregnant and mother of a little boy with cystic fibrosis; I wish to know if there were risks for him to come to see me in the maternity where his little brother will be born or if it is better to wait for the return at home (which would enormously grieve me). If there is no ...
30.11.2015
Best care possible
Hello dear expert team, after 5 years we dared once more to widen our family planning. Background: our daughter has been diagnosed to suffer from CF at the age of 4 months, is in treatment since and she is doing very well. She will be 6 years old, soon. Now I am in the 11th week of pregnancy ...
11.12.2015
Moving to the north of Germany
Dear expert team, My son is 4 years old and suffers from CF. He is doing relatively well and he lives a normal life. We live in a city in the middle of Germany, but we will move to the North of Germany, soon. My question is where to go best: North Sea or the Western part of the Baltic Sea, apart ...
30.11.2015
Omega 3
Hello, do you think that omega 3 could play a role on lung inflammation in cystic fibrosis?
12.10.2015
Aquagenic Wrinkling of Palms
Hello, My dermatologist diagnosed me an Aquagenic Wrinkling of Palms: does it necessarily mean that I have cystic fibrosis? Regards.
15.09.2015
Respiratory signs
Hello, My one year old CF baby has important digestive symptoms but no respiratory signs, even having had nasopharyngitis, I have not seen significant differences compared to another baby. Do you think the respiratory involvement will be limited or it will appear in the forthcoming years?
15.09.2015
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