Topics

Pseudomonas
Dear expert team, our 1-year-old daughter has recently Pseudomonas in her routine throat swab. Therefore she receives an antibiotic treatment. Is a colonization with Pseudomonas at the age of 1 year unuasually early? Do we have to adapt ourselves to a severe course of the lung disease, ...
29.09.2014
CF mutation
Hello, can you explain what does it mean that the F508del mutation of the CFTR gene has been found in my 5.5 year-old daughter, and what are the consequences for her respiratory as well digestive health? Thank you
10.09.2014
CF-contact to baby?
Hello, is a CF patient actually allowed to have direct contact to a newborn? The immue system is indeed maturing only over 4 months...in the concrete case the CF patient is only colonized with Staph. aureus, however did already have Pseudmonas in the past. Many thanks for your answer (the baby ...
18.08.2014
Sweating
Hello, our one-year-old son with CF is sweating for several weeks very strongly at the head, even if he is not too warmly dressed and it is not warm. Especially at night and when inhaling. His hair is often completely sweated wetly. Shall we get this investigated (and if yes, how?) or is it ...
29.07.2014
Fluimucil® (acetylcystein) and / or other mucolytic drugs
Hello, For children suffering from CF, are Fluimucil® (acetylcystein) or other mucolytic drugs in form of tablets or sirup sensible as long term therapy? Can they liquefy the CF mucus or are they not effective? Many thanks!
14.07.2014
Can CF also occur without pulmonary symptoms?
Dear Sir/Madam, My son (3 years and 3 months) is currently being tested for CF. He had a sweat test, but unfortunately the test failed because he didn’t produce enough sweat. However, I do not think my son has CF because he has no pulmonary symptoms. He has upper respiratory infections (with ...
08.07.2014
Chance of CF
Our baby was born at 33 weeks of gestation. The IRT test as a newborn was negative. The birth weight was 1650 gr and the first 5-6 months the baby gained weight very satisfactorily. Suddenly, he started having recurrent bronchiolitis. Since then he gained 200 gr monthly. Now, at 7,5 months of age ...
02.06.2014
Occurrence possible only at adult age?
Is it possible that it occurs only at adult age (38) with symptoms in the mornings with cough until nearly vomiting, over the day dry cough, x-ray of the thorax without pathological finding, loss of weight, blood values and allergy test all without pathological findings, no other findings, ...
26.05.2014
Families with several CF people
Hello Are there families with several people with cystic fibrosis ? Thank you
14.05.2014
What evolution can be expected for CF diagnosed in adulthood?
Hello, I am a 28 year old woman and recently diagnosed with CF (sweat test: 114). I have got nasal polyposis since childhood, I had pneumonia at 24 years and an asthma attack (with bronchitis) at 26 years. Otherwise I'm pretty good. I do not particularly cough and I do not have specific ...
29.04.2014
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