Treatment recommendation for persistent Pseudomonas/Staphlococci infection
Dear team, I have received a lung transplantation (2010) and suffer from CF. For 6 months, my lung function decreases rapidly and since then, it is constantly low. Antibody tests, bronchoscopy, CT and x-ray had already been done. Only in the bronchoscopy, Pseudomonas and Staphylococci could be ...
Round trip through California
Dear expert team, my daughter (19, CF), is chronically colonized with Achromobater and since February 2016 also with atypical Mycobacteria - Mycobacterium avium. This is at the moment treated under complicated circumstances (partly she doesn't tolerate the antibiotics). She will be finishing ...
Haemophilus influenzae
My daughter, 1,5 years old suffers from CF and has now for the first time Haemophilus influenzae in the throat swab. Our treating CF physician regards it as a harmless germ, it is therefore not treated at the moment. I would like to have a second opinion. Of course, we do not want to give ...
Discopathy at 14 years, Propionibacterium acnes, growth
Hello, Our 14-year-old teen with cystic fibrosis experienced severe back pain in May-June. He finally performed an MRI in August with this result: On the contrary, there exists in L4-L5 and L5-S1 a disc-shaped bulge with no disco-radicular conflict or a repercussion on the foramens. The bulge ...
Hello, is it possible to have these 2 genes and have a staphylococcus aureus in a throat sampling for bronchiolitis? Because the 5T gene is a mild gene and I have never heard of Staphylococcus aureus for a patient with this combination of genes. Cordially
Hello, I heard that onions could be harmful for the CF patients because they might contain the B. cepacia bacteria. Can we still eat it? Even raw? Thank you for your answers.
S. aureus small colony variants
We just received the sputum culture of our 7yr old daughter, which showed the presence of S. aureus and S. aureus small colony variants. What is the meaning of small colony variants? Should we treat these colonies? Is it a classical evolution of S. aureus?
Hello, I have still the finding of Enterobacteria (diverse Serratia liquefaciens, then they disappear, then Serratia marescens is appearing or also Enterobacter cloacae) in spite of the fact that I inhale without pause diverse antibiotics (Tobi podhaler, Tobi humid inhalation, Colistin, ...
Mycobacterium avium – intolerance of drugs
In my 18-year-old daughter Mycobacterium avium has been found during bronchoscopy in January 2016. Furthermore she has chronic infection with Achromobacter since 2010 and if this was not enough, she has a very high allergic component (IgE 2200). It is for sure, that in August 2014 no Mycobacteria ...
Sputum result, additional question
Thank you first of all for answering my question. Unfortunately the second and third part has not been answered. What does it mean if Penecillium sp. could be found in the sputum, however no finding of fungi is documented? Is my body now producing penicillium?
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