Topics

Forest kindergarten
Dear Expert Team, our little daughter (13 months) is a CF patient. She mainly has digestive problems (two intestinal obstructions already). So far, she has not had any severe infections and her lung is clear. Nevertheless, she inhales saline solution twice a day. We are now considering enrolling ...
15.01.2009
ABPA and greenwood forest
I would like to ask about a relationship between ABPA and a walking in the greenwood during autumn time. I’ve had CF and last years I‘ve acquired also ABPA treated by prednisolon and anti IgE medication (Xolair). Sometimes when I am walking in the greenwood forest I wake up for dry cough. Is ...
12.01.2009
Bugs !!
My 16 yr old son has CF. He has been growing Mycobacterium Abscessus for a couple of years and is on intensive eradication therapy (Amikacin nebs, Clarithromycin) He recently also grew Scedosporius - and has now cultured Pseudomonas (again) so is on eradication therapy (Colomycin Neb & Cipro ...
26.01.2009
Serratia
Dear expert team, in my daughter’s throat swab (she has CF, 3 years old) the germ Serratia was detected. Which impact does this germ have on the lung function or the course of the disease? How likely is it to get rid of it ( the clinic prescribed an oral antibiotic)? Since the informational ...
27.11.2008
Contagion
Dear Expert Team, I have an urgent question: my new girlfriend carries the Epstein virus and had a borreliosis infection from a tick one year ago. Now my question: is that dangerous for me as a CF patient? Can I contract the virus, or is it safe? I would appreciate a quick answer! Best ...
04.01.2009
Stenotrophomonas
Dear Expert Team, My problem germs are mainly Staphylococcus, Haemophilus, sporadically Aspergillus, and currently also Stenotrophomonas. Over the past three weeks I have been feeling very sick and have had a lot of sputum and dry cough particularly at night, which has resulted in exhaustion and ...
22.12.2008
Pseudomonas fluorescens
Is intravenous antibiotic therapy necessary when Pseudomonas fluorescens is found in sputum of a CF patient? Is this type of Pseudomonas dangerous? Is the patient considered as colonised by pseudomonas? Thank you for your reply.
04.01.2009
Mycobacterium abscessus
Hi, My daughter is 13 years old, recently she has Mycobaterium absessus and her PFT drop drameticly from 111% to 66% - 62% and now she only have 52%. Does anyone have already experience in this field??? She is on Amukin and Biclar treatment.
24.11.2008
Mycobacterium abscessus
Can patients with Mycobacterium abscessus colonisation be transplanted ?
10.11.2008
Therapy
I've got a few questions: My daughter is 12 years old, diagnosed with CF at 4 months of age. She's got isolated from sputum bacteria P. aeruginosa for 2 years and a half. Since then she's been ill more often and was treated by IV antibiotics (5 hospital stays from June 2007 till June 2008 In ...
10.11.2008
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