Topics

Acinetobacter baumanii
Hello, I have been informed from my CF center via the telephone, to have the above mentioned germ. It would be well treatable with Cotrimoxazole respectively with Colistin per inhalation. As I have no other symptoms except my chronic inflammation of the sinuses, that is always severe in this time ...
17.12.2014
Stenotrophomonas maltophilia
Hello, We learned one month after birth that our 4 months-old daughter was diagnosed with CF. She carries the DF508 and G3272-26A mutations. She is followed up every month at the CF Center X, has respiratory physiotherapy every day and is currently pancreatic sufficient. My question is, we just ...
03.12.2014
Carpet and picking mushrooms in the forest
Hello I’d like to know what is better in a room for a child with cystic fibrosis: carpet or linoleum like plastic soil? And I'd would like to know if it's dangerous to pick mushrooms in the forest with the Pseudomonas or other bacteria present in the ground and moisture? Thank you
03.12.2014
Mycobacteria
Hello, My 6 year old son just had a sputum culture that shows the presence of mycobacteria. I wished to have more information on this germ and whether my son will have this germ all the life as I gather that it is resistant to antibiotics. Also I'd like to know where is the research regarding ...
03.12.2014
Infection in case of CF, even once possible without antibiotic?
Dear expert team, my question: Can/should/is it allowed for a child with CF to get through an infection with increased cough even once without the intake of an antibiotic? There are controversing opinions about this. Some of the doctors advise immediately an antibiotic drug, others are rather ...
03.12.2014
Correctors and germs
Dear expert team, supposed one of the new drug combinations e.g. by Vertex would be suited for a correction of the homozygous Fdel508 defect, would encourage the cells to take up their tasks to at least 10% until e.g. 40%, and would result in a similar improvement concerning FEV1 and ...
25.11.2014
Why waiting instead of treating?
Hello, a sputum sample has been collected from my 7-month old baby last Sunday because of a greasy cough and a runny nose. Our next medical visit is planned on the next Thursday and treatment is only based on nasal irrigation with isotonic saline and acetaminophen in case of fever. I am anxious ...
10.11.2014
Staphylococcus aureus
Hello, We got to know one month after the birth of our now 3-months-old daughter that she was suffering from CF. She carries the DF508 and G3272-26A mutations. She is followed every month at the CF Center. She has every day respiratory physiotherapy and is until now pancreatic sufficient. My ...
04.11.2014
Pandoraea sputorum
Hello, A little time ago, the sputum culture that was made during a quarterly visit revealed that my 13-year-old son was carrying the Pandoraea sputorum. A cure has been quickly programmed. Can you tell me what are the places that bear a risk of contamination with the germ? Thank you for your ...
04.11.2014
Candida albicans and Aspergillus
Hello, I would like to ask you, how you judge the result of our daughter. Our daughter is nearly 5 years old. At the age of 4 months, she has been diagnosed to suffer from CF. She is doing well and we are very well cared for in our CF center. Until now, throat swabs showed mostly Staph. ...
20.10.2014
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