Blood in the sputum
Dear expert team, Pseudomonas aeruginosa has been found in my sputum. Already a few months ago, I did inhalations with Colistin (2 x 1 Mio). I tolerated the inhalations well. The health condition improved. As Pseudomonas has soon been found again, we decided to do a 3 months eradication therapy ...
Mycobacterium intracellulare in the CF sputum
Hello dear expert team, in my sputum (I am nearly 30 years old) Mycobactrium intracellulare has been detected last December for the first time. Since then this bacterium could be found in 2 further tests, so that I can assume a chronic infection. As I have been at another CF Center before and to ...
Hello, I am carrying the F508del, I am 21 years old I am diabetic and I have a thyroid dysfunction (hypo) and I take the pill "leeloo®". I saw several articles on the need to focus most heavily dosed ethinylestradiol pills. Concrening CF articles I see the opposite. What is that about? In ...
Fever in a 11-months-old child
Dear expert team, My daughter is 11 months old and has been diagnosed a few weeks ago. Now she has slight fever (37,8°C)…when shall I present her at the CF center? What should I do now? Many thanks! S.S.
Childhood diseases
Hello, My 3.5-year-old son started school in September and since he had 5 ear infections, laryngitis, some colds, a little bronchitis, gastro ... his cough occurs almost daily (with ups and downs, sometimes the day, sometimes the night, sometimes all the time ...). How can we know if he is ...
Enterobacter chloacae and Serratia marcescenz and S. liquefaciens
Dear expert team, I suffer from CF and I am Pseudomonas negative and have again and again the above mentioned germs in the sputum. Where can one get those bacteria from, they are intestinal germs, aren’t they? The FEV1 value is stable, however I cough more and have difficulties in bringing up ...
Questions about CF
Hello, I live in Morocco and I am the mother of a 10-year-old CF child. I would like to ask some general questions related to its illness: Regarding sputum analysis We had analyzed the same sputum sample in 2 different establishments (private laboratory and a laboratory in a university ...
Inhalation of antibiotics during i.v. therapy
Hello, is it correct not to inhale antibiotics during an i.v. therapy (tobramycin and meropenem) in order not to damage too much the organs (kidneys etc.)? I am a bit sceptical, to inhale at least for 14 days only twice a day with hypertonic saline 6% and once a day with DNAse. I would be ...
Staphylococcus aureus
Hello, The 2 last sputum analysis of my 8-year-old little son showed Staphylococcus aureus. However, no antibiotic was prescribed. A priori, the CF Center does not find this alarming. Is it because there are colonization thresholds? Thank you for your answer.
My daughter (15-years-old) is colonized with Staph. for at least 2 years. Now, 4 months ago, an infection with Acinetobacter baumanii (multiresistant MRGN 3) and lately an infection with Haemophilus influenzae occurred additionally. Her FEV1 value lost 35% in 3 months. Now Acinetobacter is not ...
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