Stenotrophomonas maltophilia
Hello, We learned one month after birth that our 4 months-old daughter was diagnosed with CF. She carries the DF508 and G3272-26A mutations. She is followed up every month at the CF Center X, has respiratory physiotherapy every day and is currently pancreatic sufficient. My question is, we just ...
Infection in case of CF, even once possible without antibiotic?
Dear expert team, my question: Can/should/is it allowed for a child with CF to get through an infection with increased cough even once without the intake of an antibiotic? There are controversing opinions about this. Some of the doctors advise immediately an antibiotic drug, others are rather ...
Pseudomonas aeruginosa with excessive mucus formation
Dear expert team, due to an infection with a strongly mucus-forming pseudomonas, the last two times I was in hospital for 5 weeks for an i.v. therapy with two antibiotics (Fortam®/ceftazidime & Amikin®/amikacin; colistin & Ciproxin®/ciprofloxacin). Both times, after 10 days, a resistance and ...
Nasal vaccine despite colistin inhalation
Hello, can I have my child vaccinated with the nasal flu vaccine even if he inhales colistin? Many thanks.
Why waiting instead of treating?
Hello, a sputum sample has been collected from my 7-month old baby last Sunday because of a greasy cough and a runny nose. Our next medical visit is planned on the next Thursday and treatment is only based on nasal irrigation with isotonic saline and acetaminophen in case of fever. I am anxious ...
Staphylococcus aureus
Hello, We got to know one month after the birth of our now 3-months-old daughter that she was suffering from CF. She carries the DF508 and G3272-26A mutations. She is followed every month at the CF Center. She has every day respiratory physiotherapy and is until now pancreatic sufficient. My ...
Candida albicans and Aspergillus
Hello, I would like to ask you, how you judge the result of our daughter. Our daughter is nearly 5 years old. At the age of 4 months, she has been diagnosed to suffer from CF. She is doing well and we are very well cared for in our CF center. Until now, throat swabs showed mostly Staph. ...
4MRGN and regular i.v. therapie
Hello, for about one and a half years besides a "normal" Pseudomonas aeruginosa also a 4MRGN is detected in my sputum. According to the lab, it is though still sensible to 1 or 2 antbiotics. My question is now, if regular i.v. therapies (like they are desired by the treating physician) make sense ...
Acinetobacter baumannii
Dear ladies and gentlemen, in the throat swab of our 7-year-old son Acinetobacter baumannii has been found. Acutally he receives cotrimoxazole due to an infection. Now we have been told, that we have to be isolated in the CF center and the weekly physiotherapy should take place from now on at ...
Tobramycin inhalation
Hello, is there any information if tobramycin inhalation during early pregnancy can be harmful for the baby? We have to inhale tobramycin twice a day with our 2-year-old CF daughter and we ask ourselves if the vapours that we share by sitting next to her could harm the unborn. Many thanks
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