Topics

Beach
We were told that our child could swim safely in the ocean but can he play in the sand at the beach? The beaches are often not very clean when we dig a little, the sand is humid and potentially contaminated with Pseudomonas aeruginosa? What is your opinion? Thank you
29.07.2014
CF patients meetings and organizations in Romania
Hello, I myself have a question about meetings and updates related to patients with cystic fibrosis in Romania. Where I could sign up to receive the data? Thank you!
14.07.2014
Flight travel and blocked nose
Dear experts, we are flying to Florida (9 hours) with our daughter (10 years old). She has a blocked nose for a longer time, that is treated with the PariSinus® device and nasal shower and nasal cortinsone. She always has great pain during landing. Can one do even more? Is such a long air ...
24.06.2014
Camping holidays in spain
Are there hygienic concerns in case of a stay in a camping van on a campground in south Europe? Our son is 13 years old and has CF. Family B.
24.06.2014
Looking for a physiotherapist in Portugal (Braga)
Hello, Mother of a little 3 and a half year-old CF girl, I would like to know if anyone knows one or more qualified physiotherapists in the field of CF in the region of Braga, in Portugal (we will go this summer). Thank you in advance ...
19.05.2014
Wet home
Hello, I have a little 5-year-old boy with cystic fibrosis, this summer we want to go on holiday next to Pornic (44) where my grandparents have a small house but we sleep in the bungalow (it’s an old garage). They live 50 meters from the sea, the bungalow is wet, they put regular anti-humidity ...
12.05.2014
Travelling with CF to Indonesia
I have read a question about travelling with cystic fibrosis on the forum. In an answer from 2009 is was inadvisable to travel to South East Asia because of the Burkholderia pseudomallei bacterium. If available, I would like to have an up-to-date answer to my specific question. We have planned ...
24.03.2014
Moving to the USA
Hello, I am 30 years old, I am a School teacher and I would like to teach in the USA. I will be in the status of expatriates or I'll be sent for national education. How will my health care be supported there? What should I do for my care is fully supported? Thank you in advance for your ...
24.03.2014
Rivers & CF
How high are the risks & what are precautions we should take with a toddler cfer and playing in a river? Specifically the Guadalupe/Comal? High vs low?
24.03.2014
Stagnant water?
Dear expert team, the grandparents of our daughter (2.5 years old, CF) spend their summer holiday every year at the Lake Constance. This year they would like to invite our daughter to go with them there. They both want to calm our worries concernig swimming lake and Pseudmonas danger with the ...
17.02.2014
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