Topics

Aerosol in an 18 months-old child
A Pseudomonas aeruginosa has been found for the first time in the sputum of my 18 months-old son. The CF Centre physicians have decided to treat him with twice daily nebulized antibiotics (15 minutes per nebulization). He totally refuses the nebulization and when I force him to do that, of course ...
21.01.2013
N-acetylcysteine (Mucomyst®)
Why my 16-year-old CF boy has never received a treatment with N-acetylcysteine? Is this drug not indicated in such a disease? My daughter suffering from a viral bronchitis has been treated with N-acetylcysteine. Thanks for your response.
14.01.2013
Complementary inhalation with alkaline solutions sensible?
Paul McGray in Iowa was recently able to show that inhalatoin with alkaline solutions normalizes the PH value of the lungs (e.g. McCray P. Inflammation and infection, lessons from the CF pig model. 35th European Cystic Fibrosis Conference, Dublin, Ireland, 6–9 June, 2012). Are any corresponding ...
10.01.2013
Hypertonic saline solution – study results for small toddlers
Dear expert team, Our daughter (now 15 months old) has been inhaling hyptertonic saline solution for 10 months (currently 3ml 3% twice a day, planned to increase to 6%). Now I came across the results of the following study: “Inhaled hypertonic saline in infants and children younger than 6 ...
13.12.2012
Cause of cough?
Dear expert team, my son (CF, 4 years old, 1.07m, 16.5kg, mild progression so far) rarely coughs when he does not have infections, only during strong physical action and sometimes after inhalation. For some time now, he has also been having a continuous cough (dry nervous cough) that starts ...
13.12.2012
Follow-up question on nasal irrigation
Hello, I understand the problem of tap water potentially being contaminated with bacteria. What do you think about the following alternatives to boiling water: 1) distilled water 2) non-carbonated bottled water Can I use these two alternatives instead of tap water for nasal irrigation or ...
13.12.2012
Conflicting expert opinions
Dear expert team, does hypertonic saline solution only mobilize more mucus, or can its inhalation also have negative effects, i.e. promote mucus production? There are two conflicting assessments of this in this forum: "After all, with inhalation, one sometimes produces mucus that was not ...
11.12.2012
Voice hoarseness
My child is 3 years old and suffers from CF. For a long time there is a hoarseness in his voice. Does it have anything to do with CF? I blame it on the Airway clearance therapy, or to the fact that he screams a lot. I would like your opinion.
15.11.2012
Mucoclear® (6% hypertonic saline)
When Mucoclear® (4 ml of 6% hypertonic saline) is nebulized with an e-Flow rapid, there is a residual volume of 1 ml in the device. So, at the best, only 3 ml are inhaled, and a certain quantity of drug is also lost during the expiration. Do you think that it could be better to nebulize 2 doses of ...
11.09.2012
Nasal irrigation
Do CF patients still have to use sterile salt water for nasal irrigation? After all, if we boil water for this, it has to cool down for at least 20 minutes; but during this time germs will form again!?!
11.09.2012
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