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Keywords
- ABPA_Aspergillus
- accompanying diseases
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- asthma
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Topics
- Sweat test
- Hello, my daughter has had a sweat test in a CF center. I have been told, that for diagnosis only the chloride value was important, this could however take some time. As I am a worrying mum of a perterm baby, one could see my fear and I got the information that the conductivity was about 35 ...
- 19.05.2017
- Juvenile arthritis and CF
- I have a 4 year old boy who was diagnosed with juvenile arthritis 2 months ago. He has started treatment. His weight is the same the last few months, something that worries me. He weighs 14 kgr and is 103 cm tall. Since last week he has a productive cough, which has not got any better, despite ...
- 15.05.2017
- Parents - carriers of CF mutations
- Good morning, I am at the 12th week of gestation with my second child, and my doctor recommended to check for CF, something my gynecologist had not recommended during my first pregnancy. I was checked for 85% of the CFTR mutations and I was found to carry the G542X mutation. My husband was ...
- 15.05.2017
- CF possible?
- Hello, my daughter is 14 months old and has, after a severe infection with RS virus at the age of 9 weeks, persistent bronchial problems, she gets an inhalative steroid and montelukast permanently. In the last 2 months she had two times a bronchitis and 2 pneumonias short after the other that had ...
- 12.05.2017
- Sweat test versus newborn screening
- Helllo, our daughter has had a newborn screening at birth, 2.5 years ago, the result was normal. The sweat test last week was at 95. Which test can we trust more? Other hints are cough (without mucus) and she gets infections very easily. The weight is normal.
- 28.04.2017
- Sodium- and chloride values not clear
- Our 16-year-old daughter had a sweat test done, because her height is only 1.48 cm (I myself have only 1.56cm height). The sodium value was 68 and the chloride value 39. We have had these values alreday for the second time. She however does not have any symptoms, in spite of panic attacks with ...
- 03.04.2017
- Sweat test and diagnostic algorithm
- Hello dear team, there are patients who had a negative sweat test and diagnostic algorithm, however the function of the pancreas is not given anymore and the course of the illness is like in CF patients. Pneumonias, infections, etc. Both of my children are in the meantime 27 and 28 years old, ...
- 03.04.2017
- Snoring nose
- Hello I am the mother of a 2- months-old child, very worried; He has a persistent and severe pneumopathy at 1 month (following a rhinitis). His neonatal test is negative. He is followed by a pneumopaediatrician who had prescribed him a entoline and singulair and pulmicort treatment in the long ...
- 17.03.2017
- Moderate forms
- Hello, My son 9 months old, has moderate form cystic fibrosis F508 / R347H. He is to this day without symptoms, without pancreatic involvement. I do not understand the term "mild" since I am told that this can evolve into a classic form like staying moderate. Do moderate forms have a somewhat ...
- 14.02.2017
- Non conclusive sweat test
- Hello, following a hospitalization for bronchitis with severe oxygen-dependent asthma crisis and analyzes of positive staphylo and pseudomonas in sputum, we carried out a sweat test. Unfortunately the data are not usable because not enough sweat. We have to do it again. My question is: if my ...
- 14.02.2017