Topics

French Registry
Hello, To a question I asked you about the mutation 3849 + 10 kb and neonatal screening you answered that 80 patients were carriers of this mutation and only 17 of them were detected by neonatal test. Were the other 63 patients false negatives because they were pancreatic sufficient? Thank you ...
11.05.2016
Frequency of care outside infection phases
Hello, I am contacting you to compare practice in France and in the Czech Republic concerning the frequency of care, especially nasal aspiration. We live in the Czech Rep. and our 5-week-old baby was diagnosed to suffer from CF. We have 3 sessions per day (breathing physiotherapy, inhalation and ...
08.04.2016
Wellbeing cure for CF
Hello, I would like to know if in France there are specialized treatments for cystic fibrosis just like Thalassotherapy cures. I've heard of a center in Roscoff, Brittany. Can you tell me a little more. Thank you in advance
27.02.2016
Dental implants or dental bridges
Dear expert team, I am a CF patient, 50 years old, with normal lung function (FEV1 about 80%), with Pseudomonas and normal weight and have a diabetes for 15 years. Should I rather decide for an dental implant or dental bridge regarding diabetes and CF? Many thanks for your help and a happy new ...
09.02.2016
Medical checkup over the age of 50
Hello dear expert team, I am 51 years old and suffer from CF. I received an information about a medical checkup from the insurance for men over the age of 50. I.a. an endoscopy of the bowel was proposed to be done every 2 years. I am very insecure. In healthy people such a checkup makes sense to ...
07.02.2016
Emergency: Rare Disease Personal Card
Hello, My daughter has CF. She has got an accident and was referred to the hospital by an ambulance. Fortunately conscious, she was able to direct the hospital staff especially concerning an injection of morphine. Can you tell us if there is a formal document available to doctors in case of ...
13.09.2015
Perenterol® or other probiotics on the prescription?
[original question & answer come from the German platform] Hello, I have just started a long-term antibiotic treatment with Zithromax® (Azithromycin), in addition to an interval therapy with Cotrim® (Cotrimoxazole): intake for 10 days, pause for 4 weeks. That is really stressing my ...
13.09.2015
Staying abroad in Singapore
Is there medical CF care in Singapore in case of emergency (staying for 3 months)?
12.06.2015
CF patient who doesn't want to have a treatment
Hello I just want to know if there is a study for the follow-up of CF patients who don’t follow any treatment, even when proposed?
07.06.2015
Dental prophylaxis for children
Hello, My daughter (CF) is 6 years old now and my dentist would like to start with regular dental prophylaxis. I already know the procedure from my older son (non-CF). Among other things there is a blue liquid which is dabbed on the teeth to make visible whether the child has brushed its teeth ...
16.05.2015
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