Topics

CF
My little girl is 11 years old. In 2007 we went to Timisoara [Romania], to Dr. Zagorca Popa for CF. It all started at the age of 8 months with celiac disease, followed from the age of 5 by bacterial pneumonias. The genetic test was negative, but the sweat test was positive (68, 58). 5 years have ...
08.07.2013
Training to perform intravenous antibiotic treatment - traning for care for relatives
My husband has CF. It's more and more difficult to find nurses who agree to stay at home during the time intravenous antibiotics are given. I would like to receive training and be allowed to prepare and perform the intravenous antibiotics. Could you tell me if this kind of training exists and if ...
19.06.2013
chiropractor
My granddaughter is 5 years old. Can a chiropractor help her? She is having breathing problems. She has had 3 visits in the hospital in the last 7 months with low O2 stats.
13.05.2013
Treatment of CF in Paraguay
Is there any caring CF-center in Paraguay?
10.05.2013
Permanent brace, loose brace or better no one at all?
Hello, I am a dentist and I am working in an orthodontist's office. We are treating at the moment a patient with CF (12-years old). Oral hygiene is not optimal but she wants absolutely to have her teeth done. Our question would be if we would do harm to the patient with a loose or permanent brace ...
19.04.2013
reimbursement of care in England
My 16 year-old daughter will visit England for two weeks. According to the organizers, reimbursements with European health insurance card pertain only for health care provided by a physician but not for a physiotherapist. Could you confirm this?
16.04.2013
Trip to England
Is there an equivalent association for "Vaincre La Mucoviscidose" (the french CF association) in England?
16.04.2013
systematic sputum / cough swab culture
Hello, The CF centre of my daughter does not practice cough swab systematically at each visit. We are afraid of missing out a bacterium that could worsen the health of our daughter. We are in February and the last culture was done in September. Can I ask them to do it consistently? Can a local ...
04.03.2013
Relation Physician / Patient
Why so many patients need a website like this one to get answers to their concerns, their issues, their anxieties? I myself have asked you a question: you answered perfectly. I just regret that no more doctors are not very available to listen to patients. THANK YOU ALL
04.03.2013
Individualized education plan (IEP) at school
Hello. My daughter starts school in September. I've asked the CF centre following my daughter if it was possible to make an IEP with them. They replied that there were no need to write one and a certificate for medicines and prescriptions would be sufficient. I'm a little stressed by this ...
28.02.2013
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