Topics

Multi-resistant Pseudomonas after lung transplant
Our 24-year-old son has been having multi-resistant Pseudomonas for ca. 18 months now. He received a lung transplant three weeks ago. Since he was in an induced coma four weeks prior to the transplantation, he does not have any muscles anymore and is now still in intensive care. What about the ...
14.01.2013
Vase of flowers
Hello, We were told in our center it was better to avoid plants ... Should we also be afraid of a vase of cut flowers, and therefore containing stagnant water (especially in relation to P. aeruginosa)? Thank you for your site, your answers and your time spent to respond.
10.01.2013
Great concern – requesting an answer
Dear expert team, A friend of mine has CF. She now has the following germs in her sputum: high counts of Pseudomonas fluorescens, Burkh. gladioli, Enterobacter, Candida albicans, and masses of Haemophilus parainfluenzae. The Burkh. gladioli had been detected often before. The Pseudomonas is new. ...
08.01.2013
Follow-up question on nasal irrigation
Hello, I understand the problem of tap water potentially being contaminated with bacteria. What do you think about the following alternatives to boiling water: 1) distilled water 2) non-carbonated bottled water Can I use these two alternatives instead of tap water for nasal irrigation or ...
13.12.2012
IV effect
Dear CF team, I have been making the same recurring experience for several iv therapies: Before the iv: a lot of sputum and low physical fitness. One week after the start of the iv: less and lighter-colored sputum and better physical fitness –lasting for a few days. Starting with day ...
11.12.2012
Cave
Hello, Are there recommandations against visiting natural caves for children with cystic fibrosis? I think especially about the Pseudomonas aeruginosa germ. Otherwise what precautions should we take (wearing a mask) ... thank you
15.11.2012
fish bowl
Does a fish bowl contain stagnant water? Or can there be other dangerous bacteria for a child with Cf? Can the child help changing the fishbowl water?
11.12.2012
pond water
Can a child with CF play in a pond (fishing, sailing,..) or accidentally fall in the water without additional risks?
11.12.2012
resistance
Hello I would like to know when resistance to antibiotics occurs. Is it smart to change regularly the maintenance dose? What are the consequences of antibiotic resistance? Are there enough effective antibiotic treatments? Thank you
14.11.2012
Pseudomonas vaccine
Hello, I am the mother of a seven and half months old CF baby. Today my baby is well. I have heard about clinical trials for Pseudomonas vaccine. What is the development stage? What are the results about these trials? In advance thank.
12.11.2012
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