Topics

Prevention Pseudomonas
Dear members of the expert team, some CF patients already have pseudomonas infection at the age of 2 where others are only infected at the age of 18 years. Is anything known about risk factors or in other words what can you do to prevent infection (of course I know the guidelines on hygiene and ...
19.10.2009
Different laboratories - different results of sputum investigations
Dear expert team, I have a question concerning germs in the sputum. About one time a year there is an investigation of the sputum in the CF-center, where in the last years Pseudmonas (different types) have been detected each time, in the sputum as well as in the nasal secretions. Furthermore, ...
03.08.2009
i.v. therapy regularly in case of chronic PsA??
Dear Expert Team, My 11-year-old son contracted PSA 16 months ago (i.v. therapy in June 08 was not successful). Antibodies in serum were positive in April 09. FEV is 92%, and my son is very fit (no secretion, no cough, X-ray negative, good weight). Is there a recommendation for children ...
11.08.2009
no subject - treatment of Ps. aeruginosa
For how long should be Pseudomonas treated if my daughter has it for the first time?
16.07.2009
Azithromycin at chronic PSA
Dear expert team, my 11-year-old son is chronically colonized with Pseudomonas aeruginosa (PSA) for one year (FEV1 98%). He inhales 2x colistin and 1x DNAse. We consider, in case his lung function should worsen, to try azithromycin. - how is the effect of this antibiotic on the PSA ? (by which ...
09.07.2009
Increased amount of sputum and weakness
Hello, I (female, 31) have CF (Pseudomonas colonized) and since some time Aspergillus and the MRSA. For about the last 2 months I cough more and also have much more sputum. I realize also when coughing, that there is more in the lung. Due to the frequent and exhausting coughing I am often very ...
22.06.2009
Garden pond
Our grand-daughter suffers from CF, which has been diagnosed about one month after her birth. Now she is one year old. We have a garden pond with fish. The parents of the child told us to abolish the pond after having asked the CF doctor in Cottbus, as it should be more dangerous than a wirlpool. ...
03.06.2009
Visit at the out-patient clinic / child puts finger in the mouth
Dear ladies and gentlemen, my daughter, CF, 7 years old (Pseudomonas negative) plays in the childrens waiting room and touches the floor and permanently she has the hands in the face and in the mouth. I do not like this and have talked to her many times, but she says that she could clean her ...
26.05.2009
Tube water
My daughter with Cf (6 yrs old) drinks tap water in the Kindergarten as do all other children. Our physiotherapist has cautioned us not to let her drink tap water, since tap water can be contaminated with bacteria. However, the water quality in the Kindergarten is high according to drinking water ...
18.05.2009
Tobi
Hello, I am a parent of a child with CF. I’ve got a question about the treatment with the nebuliser solution Tobi-300. I know that it’s strictly individual, but I am interested what are the criteria for treatment. If a patient has Pseudomonas aeruginosa in the lungs and has started ...
04.05.2009
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