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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Rivers & CF
- How high are the risks & what are precautions we should take with a toddler cfer and playing in a river? Specifically the Guadalupe/Comal? High vs low?
- 24.03.2014
- Pseudomonas aeruginosa
- Is there a mean age of primo-colonization with Pseudomonas aeruginosa for CF patients? After primo-colonization, is it possible to eradicate Pseudomonas for a long period of time or should patients expect chronic Pseudomonas infection immediately after primo-colonization? Thank you.
- 24.03.2014
- CF mutations
- I am a mother to a girl with F508del/CFTRdele2,3 (21kb) mutations. She was diagnosed at 2 months old. Now she is 5 and doing very well. Only 2 lung infections, no P.a cultured. Still I am concerned as I read both of the mutations are clasified as "severe". Does it mean that the progress of the ...
- 24.03.2014
- Duct heating system?
- Does anyone know if this type of heating system is a threat to those with C.F.?
- 24.03.2014
- hot tubs, jacuzzi, spa baths
- Could I get recent publications/research on the use of hot tubs etc for cf teenagers please?
- 24.03.2014
- Pseudomonas
- Is Pseudomonas (lung) curable?
- 03.03.2014
- FEV1
- Hello, I am a 46-year-old CF woman and my FEV1 has decreased after a pneumonia, that has been treated for 4 weeks with an i.v. cure because of Pseudomonas, about half of the value from 52% to 28% and I still need oxygen, two months after discharge from the hospital, in spite of the fact the ...
- 17.02.2014
- Stagnant water?
- Dear expert team, the grandparents of our daughter (2.5 years old, CF) spend their summer holiday every year at the Lake Constance. This year they would like to invite our daughter to go with them there. They both want to calm our worries concernig swimming lake and Pseudmonas danger with the ...
- 17.02.2014
- CF and airing of the house, house building
- We have the possibility in our new house to use the air that has been cooled down in earth wires as airing for the rooms and air-conditioning. As our daughter is a CF patient, we ask ourselves if in the wires Pseudomonas aeruginosa could grow and can distribute via the air-conditioning in the ...
- 17.02.2014
- Indoor playground
- As being mother of a little girl (16 months old) with CF, I would like to show her the joys of indoor playgrounds (ball pit, slides), but I would like to know if it is possible and if there is a problem with bacteria? Thanks
- 03.02.2014
