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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Handling of pets
- Dear expert team, my son (14 months old) suffers from CF. My in-laws, who are also our direct neighbours, have many animals (a dog, a cat, chicken, rabbits and sheep). My son is really crazy about the animals, but I am very insecure, in how far I shall allow the contact with the animals regarding ...
- 16.05.2015
- Gardening and kitchen garden
- Hello, My 4-year-old CF son has no particular worry like aspergillosis or pseudomonas infection (at least for now). He wishes that we plant flowers and that we maintain a kitchen garden together. I know that the aspergillus is in the ground, the compost etc.... If my son wants to do ...
- 16.05.2015
- Visit water park Neeltjejans
- What is your advice in planning a visit with a 6 year old patient with CF to the waterpark Neeltjejans on a blissful summer day? http://www.neeltjejans.nl/waterpark-attracties/
- 06.05.2015
- Brita water filter
- Many people nowadays use a Brita water filter at home to make the water lime-free. However, is such a Brita a good idea for people with cystic fibrosis? Because we’re talking about 'stagnant' water ... Thank you for your advice!
- 25.03.2015
- Water from the Rhone River
- Hello as a mother of a little CF boy with cystic fibrosis and in anticipation of the beautiful days, I'd like to have your opinion. This summer at the grandparents of my son, the swimming-pool (so contact with body and possibly mouth), a small shower before swimming, but also a small sink in a ...
- 25.03.2015
- Pyo
- What does Pyo mean?
- 13.03.2015
- Pseudomonas
- Hello after blood tests, my 2.5 year old child was treated with Tobi then inhaled colimycin (because of bad tolerance of Tobi) for 3 months because blood results are very positive for pseudomonas but there is nothing in the sputum. .. but had ciprofloxacin for three weeks with tobi and still ...
- 08.03.2015
- Pseudomonas
- Hello, My two nephews the eldest 4y and the youngest 11m are suffering from CF. They carry the F508del / 3272 26 AG. The youngest has been screened at birth, while the eldest only now (false negative at birth). The eldest had no care for 4 years. Lungs appear more damaged thereby. He just had a ...
- 03.03.2015
- Warmwater bath days in the public swimming pool
- Dear expert team, in an indoor swimming pool near our home there are so called warmwater bath days (the water temperature is at 31°C). Can my daughter (CF, 2 years old) take a bath there or is it like with the baby pools and jacuzzis and therefore has to be dehorted? If yes, this would ...
- 02.03.2015
- Sputum Cytology Examination (SCE)
- Hello, My little son, aged 5, had no sputum culture for several months. Indeed, during the last 3 controls in his CF center, no sample of sputum was possible (nothing back). If during the next visit no sample can be obtained, what is going to happen? How do we know that there is no ...
- 12.02.2015