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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Day light bath
- Hello, I understand, that the recommendation to open the water taps for 1-2 min in the morning, to flush the toilet and to open the window shortly, is linked to a day light bath. What should I do, if a do not have a day light bath? Just to turn on the air conditioning or is this not effective? ...
- 21.03.2008
- Training
- My son (19 years old) suffers from CF since birth, including cirrhosis of the liver, pancreatic insufficiency, since 2002 diabetes - still on tablets - colonization with Pseudomonas, since 2006 colonization with Burkholderia cepacia - 2-3 times a year i.v. therapy. In September 2006 he started a ...
- 21.03.2008
- Aerugen
- Is the vaccine „Aerugen“ still available in Switzerland?
- 23.04.2008
- Fountain water
- Hello, We are planning a vacation abroad. The travel organizer informed us that all pools are filled with fountain water that is exchanged every two to three days. The tap water is also fed by this fountain. Can a stay for a CF patient be recommended? Best regards A second question has been ...
- 09.04.2008
- Rainwater collector
- I am father of a 9-months-old daughter with CF. We are building a house at the moment and plan to install a rainwater collector for the new house which should provide the toilet flush with water. Is rainwater problematic concerning the colonization with Pseudomonas? Is it more advisable to use ...
- 17.01.2008
- Genotype F508/R553x, Gentamycin Inhalation
- Hello, My 30-year old son has the genetic constellation delF508 and R553X. He inhales since approx. 20 years Colistin, after his Pseudomonas showed resistance against Gentamycin. Could he, nevertheless, inhale with Gentamycin? According to Professor Kerem, the substance PTC 124 is also ...
- 21.01.2008
- Water supply
- Hello, we would like to use our well for water supply. Is this water suitable for a CF individual? After a normal investigation in Sweden, we were told that it has drinking water quality. Thanks
- 28.01.2008
- Pseudomonas aeruginosa
- How can you avoid Pseudomonas aeruginosa infection? What should be avoided? Sinks and flower vases?
- 15.02.2008
- Hygiene of Pseudomonas
- Taps and Pseudomonas
- 12.12.2007
- Ventilation system
- Hello, At the moment we are planning to build a one-family house. In the meantime our daughter, 14 months old, has been diagnosed with CF. Therefore the question arises, what we have to take into account concerning the building of our new house. So far, we only got the advice to install ...
- 14.12.2007
