Topics

Osteoporosis – necessary measurements
[Please note that the original German question also included questions about the reimbursement from the health insurance. These parts were deleted from the question and answer since they are not relevant for the cross-national Central Archive.] Dear expert team, About the topic CF and ...
14.08.2013
Anti-reflux
Hello. We have a child who has cystic fibrosis and we would like to know if the anti-reflux medications, from a general point of view, were unsuitable for them? I'm not an expert but it seems to me that these drugs are designed with the aim to "stuff" and therefore they could harm the ...
15.07.2013
Lung function declined
[The original German question was asked in telegraphic style - this is also reflected in the translation] Hello, I am 38 years old and have CF. Since about half a year my lung function has declined. FEV1 35% and alltogether about 50%. The MRT does not show any decline. Oxygen is normal (97%). ...
01.07.2013
Xolair®/desensitization
Hello, I am a 45 year-old woman with CF and allergic asthma (tested for trees, grases and fungi = Aspergillus). As the Symbicort® (formoterol and budesonide) is not enough anymore I have to do an additional therapy. Which of the two therapies against the allergic asthma would you recommend to ...
13.05.2013
Inguinal hernia
Hello, is a strangulated inguinal hernia in infants, among other symptoms, a sign that should direct the diagnosis towards cystic fibrosis?
07.05.2013
Aquagenic keratoderma in a 8 year-old girl
Hello, My 8 year-old daughter has, since December 2012, an Aquagenic keratoderma (she is unable to keep her hands in the water, after a few minutes a painful unbearbale swelling occurs). The dermatologist in the hospital confirmed this, prescribed a sweat test (the result was 26) and now ...
03.05.2013
IVIG (intravenous immunoglobulins) infusion
At age 25 I had diagnosis of Allergic bronchopulmonary aspergillosis. At 59 my current age I had a diagnosis of CF by a CF doctor. I have a Delta F508 gene and the 5T variant. I also have a Primary Immune deficiency diagnosed by an immunologist. I had no titers to the pneumonia vaccine. In ...
04.03.2013
carriers
Is there anything known about CF carriers? Do they generally have more “CF like complaints”? Or is it a coincidence that CF carriers in our family have more intestinal and pulmonary complaints? Has research on this topic already been done (f.e. abroad)?
05.03.2013
voice and CF
Hello I am a student in audio phonology, and I make a presentation on cystic fibrosis, and the impact of this disease on patients' vocal cords, could you tell me if there are few references in the field ? Thank you!
26.02.2013
Sinus pulsating aerosolsystem
Are there clinical studies about using the pari-sinus with CF with principally sinusitis problems? Is there somebody with experience with the pari-sinus?
04.02.2013
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