Topics

Survey
Please could you advise me which are the best validated & accepted survey questionnaires designed for adult and adolescent CF patients to: ascertain their knowledge of CF, quality of life satisfaction with the CF services they access.
13.07.2009
Cystic Fibrosis and sex ?
Hello, my name is Jokke and I have a question about Cystic Fibrosis and sex. My girlfriend has Cf and we’ve had a couple of times (oral) sex. But since I’m seeing her I also have trouble with mucus in my throat what I spit out. The mucus is rather thick but I can manage to spit it out after ...
13.07.2009
Therapy weariness
Dear Expert Team, fortunately, our daughter (18) is pretty fit despite having CF; she was diagnosed early and has gotten intensive therapy – inhalation, sports, physical therapy, drugs, etc. Despite Pseudomonas and seasonal aspergillosis, her weight-for-height percentage is above ...
22.01.2009
CF and massive sleep disorder
Dear Expert Team, I was accidentally diagnosed with CF only at the age of 29 and have been suffering from massive sleep disorder for several years. I go to bed at 10 p.m. and get up again at 5:30 a.m.. During the night, I get up four times and have to eat and drink something, and in the ...
24.02.2009
adherence of patient to treatment
hello my name iS DANITZA MADERO AN I AM PEDIATRIC PULMONOLOGIST OF BOGOTA COLOMBIA , I NEED TO KNOW STUDIES ABOUT ADHERENCE TO TREATMENT TO CYSTIC FIBROSIS . I will hope your a answer thanks , DANITZA MADERO
09.09.2008
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