Topics

Chloramphenicol in enzyme compounds
[Please note that this question was originally submitted in Germany; both question and answer therefore refer to the German production context of Creon®.] Hello, We just recently learned that our 2.5-year-old son has cystic fibrosis. He had severe pneumonia in the summer and due to the ...
22.10.2013
Side effects?
Hello dear experts, My son (3,5 years old) has had two positive sweat tests; a gene test is still outstanding. We have been given Creon® (pancrelipase) and multivitamins, which I think are quite effective. Since our son has been taking both, he does not want to go to sleep, has become almost ...
13.08.2013
Anti-reflux
Hello. We have a child who has cystic fibrosis and we would like to know if the anti-reflux medications, from a general point of view, were unsuitable for them? I'm not an expert but it seems to me that these drugs are designed with the aim to "stuff" and therefore they could harm the ...
15.07.2013
Pulmozyme®
Hello, we have started Pulmozyme® (rh-DNAse) a few months ago for our child. For me it was an unnecessary treatment because of my child's excellent health status (no secretion and very few antibiotics). I relalize that his condition has deteriorated since. New bacteria have appeared. I have some ...
02.07.2013
Vaccinations for CF children
Each given vaccination contains also mercury, according to my knowledge. Which vaccinations are indispensable for CF children? Which should be avoided due to the burden with mercury?
25.06.2013
Drug
The drug Bretaris Genuair® is given in case of the illness "COPD". Has anybody experience if it is also suitable for CF?
24.06.2013
Azithromycin
Dear Doctors, Yesterday I heard on the news that azithromycin antibiotics will be examined in America because it would be a dangerous drug. Do you know more about it? Because when I get a cure related to my CF, it is usually this antibiotic. (Also diane35® (hormone containing pill use in case of ...
15.05.2013
ABPA and prednisone
Dear CF-team, My 12-year-old daughter has CF with ABPA (allergic bronchopulmonary aspergillosis). For that reason she is being treated for several years yet with prednisone. This has a consequence on her growth. She is little for her age and I presume she has to take the prednisone. What are the ...
13.05.2013
Prograf® serum level
Hello, I have been transplanted with the living-kidney of my wife in 2009, everything went fine. My serum level of Prograf® (substance: tacrolimus) was always around 7 in the last month with 1.5/1.0, now we reduced to 1.0/1.0. I have been on holiday (Tenerife) and got strong cough and took an ...
23.04.2013
CF and RhDNase
Hello, I have previously read the question and the response on this topic (November 2010, Pr JC Dubus). I am the grandfather of a 6 years and 10 months old CF girl followed-up in a CF centre. Whereas everything was OK and the lungs were clean on the chest X-ray, she started a RhDNase treatment on ...
16.04.2013
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