Topics

Henoch-Schoenlein purpura as reaction to Pulmozyme®?
Dear experts, our daughter, 9 years old, is in a good general condition. However, she just had a common cold. Her immune system reacted normally, the fever disappeared after one day, then for 2 days increased temperature. She also had a strong cough in the upper area, no bronchitis, the lungs were ...
16.04.2013
Administration of Bronchitol®
Hello, I tried Bronchitol® (active substance: mannitol) and I am rather content. However, the daily inhalation is very exhausting and time-consuming, as I have to vomit frequently at this due to the disgusting taste. This has not gotten better even after several weeks of usage. I asked in the ...
25.03.2013
Pulmozyme® Abdominal Pain
When my daughter does her breathing treatment with Pulmozyme® (active agent rhDNAse) she gets bad stomach pain. She doubles over in pain and it is hard to watch. When the Pulmozyme® is done it goes away. This happens every day, and I am just at a loss. She is crying and miserable. We use a ...
25.03.2013
antibiotics
Hello, At the request of our CF-center, our 4 year old daughter is constantly on antibiotics all winter (alternating 15 days josamycin (macrolide) / cefpodoxim (cephalosporine) October to April), regardless of her state of health, particularly when "okay." We have no doubt of the benefit of ...
14.03.2013
Common ivy
Hello, I have read that «common ivy» is beneficial for the treatment of bronchial inflammation, chronic bronchitis and that it favours the elimination of mucus. Can you tell me if research has been done concerning the efficacy of «common ivy» in cystic fibrosis ? Thank you in advance for ...
14.03.2013
Tolerability of Cayston®
Hello, I have CF and asthma and therefore I inhale Cayston® (Aztreonam lysine) every second month (intolerability of Tobi® (Tobramycin inhalation solution) and Colistin)). I tolerate Cayston® better but only if I dissolve it with 0.9% NaCl and not with 0.17% sodium chloride solution enclosed ...
14.03.2013
Increased liver enzmyes
Dear expert team, at a control of a blood sample, increased liver enzymes have been detected. SGOT/AST in the serum was increased by a factor of 2 of the laboratory reference range, SGPT/ALT in the serum was increased by a factor of 3 of the laboratory reference range, ALP in the serum was ...
24.01.2013
Bicarbonate preparation for inhalation
Dear expert team, Is there a ready-to-use preparation for inhalation with bicarbonate on the market? [The question was originally asked on the German platform of the expert advice] I would like to inhale it with a jet nebuliser. If there is no such preparation on the market can I just add a ...
24.01.2013
Hoarseness with Pulmozyme® (rhDNAse)- what to do?
Dear expert team, For 2 days I inhale one time daily with Pulmozyme® (rhDNAse). From today on, a strong hoarseness has begun. If it should continue to such an extent, I will be forced to discontinue Pulmozyme®, as in my case the voice is all alone important for my profession. Pulmozyme® ...
22.01.2013
Contraception in case of CF with diabetes
Dear expert team, I (22 years old, CF) have a few general questions, that could either not be answered satisfactorily by my gynaecologist nor by my CF-doctor. 1. Which contraceptional method is the one most suitable in case of a CF patient with induced diabetes- except condom? Also in respect ...
21.01.2013
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