Cystic Fibrosis (CF)
What are the main mechanisms of disease in CF?
It is mandatory measurement of fat-soluble vitamins in patients with cystic fibrosis?
staphylococcus aureus
Which antbiotic should take CF patient, 20 years old with resistance to Penicillin and Erithromycin and who has staphylococcus aureus?
hospitals in EU
Hello there. I would like to become a guide abroad - but I can't seem to find a list of the hospitals in e.g Spain... Any help?
My 20-year-old daughter has been in and out of hospital this past year, due to infections. She is getting more and more depressed and has no energy or wish to do anything outside the house. Can you give me advice on how to help her?
coughing up blood
is it serious to be coughing up blood in cystic fibrosis
Vertex-770 potentiator
Dear expert team, my son's genotype is DF508 and R347P. As VX-770 only studies effectiveness in G551D (and DF508) at the moment I wonder what the probability is that this drug also works for other (class III-V) mutations with a certain functionality of the CFTR protein (my son must have some functionality as he is pancreatic sufficient). I guess that further studies have to be done but I would like to understand the working method of the drug and if it can be applied to other mutations. I would also like to understand why the company only focus on one specific mutation. Thank you.
Dear experts, I would like to know more about atypical forms of cystic fibrosis and tests, especially forms with involvement of the digestive system and the pankreas. Are there forms of Mukoviszidose without an involvement of the lung or at least a very late involvement of the lung within the process of the illness? I read about infections with pseudomonas which do occur very often with this illness; is a long lasting infection with pseudomonas in a toe an indicator for cystic fibrosis? Many thanks in advance.
Please could you advise me which are the best validated & accepted survey questionnaires designed for adult and adolescent CF patients to: ascertain their knowledge of CF, quality of life satisfaction with the CF services they access. Thanks
US compatible nebulizer
We are traveling in France (to visit my mother in law's family) and burned out the moter on our Pari Ultra II nebulizer even using an adapter. We are renting a nebulizer now but wondered if it would be possible to find a nebulizer that would work here but be compatible with US voltage (100-230 volts) for when we get back. Does anyone have any ideas? Thanks in advance for any suggestions given.
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